The 20 Best Dysferlinopathy Doctors Near Me in Saint Paul, MN

Find the Top Dysferlinopathy Experts and Specialists

The 20 Best Dysferlinopathy Doctors near Saint Paul, MN

Last Updated: 02/22/2026

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MediFind found 23 doctor with experience in Dysferlinopathy near Saint Paul, MN. Of these, 16 are Experienced, 5 are Advanced and 2 are Distinguished.

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23 providers found
    Distinguished in Dysferlinopathy
    Neuromusculoskeletal Medicine
    Distinguished in Dysferlinopathy
    Neuromusculoskeletal Medicine

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Randal Richardson is a Neuromusculoskeletal Medicine provider in Saint Paul, Minnesota. Dr. Richardson is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Miyoshi Myopathy, Emery-Dreifuss Muscular Dystrophy, Fukuyama Type Muscular Dystrophy, and X-Linked Dominant Scapuloperoneal Myopathy.

    Distinguished in Dysferlinopathy
    Distinguished in Dysferlinopathy

    Gillette Childrens Specialty Healthcare

    435 Phalen Blvd, 
    Saint Paul, MN 
     (0.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Jill Gettings is a Physiatrist in Saint Paul, Minnesota. Dr. Gettings is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Delta-Sarcoglycanopathy, Emery-Dreifuss Muscular Dystrophy, and Miyoshi Myopathy. Dr. Gettings is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English, Hindi, Kanarese, Marathi
    Accepting New Patients

    Supreet Deshpande is a Physiatrist in Saint Paul, Minnesota. Dr. Deshpande is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Spasticity, Moebius Syndrome, CHARGE Syndrome, and Rhizotomy. Dr. Deshpande is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Jamie Eskuri is a Neurologist in Saint Paul, Minnesota. Dr. Eskuri is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Dysferlinopathy, Duchenne Muscular Dystrophy, Myotonia Congenita, and Paramyotonia Congenita.

    Advanced in Dysferlinopathy
    Pediatrics
    Advanced in Dysferlinopathy
    Pediatrics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Mark Gormley is a Pediatrics provider in Saint Paul, Minnesota. Dr. Gormley is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Spasticity, Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Rhizotomy.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Gillette Children's - Hospital And Clinics

    640 Jackson St, 
    Saint Paul, MN 
     (0.3 miles away)
    Languages Spoken:
    English

    Micah Niermann is a primary care provider, practicing in Internal Medicine in Saint Paul, Minnesota. Dr. Niermann is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Necrotizing Granuloma, and X-Linked Infantile Spinal Muscular Atrophy.

    Experienced in Dysferlinopathy
    Pediatrics
    Experienced in Dysferlinopathy
    Pediatrics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Tori Bahr is a primary care provider, practicing in Pediatrics in Saint Paul, Minnesota. Dr. Bahr is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Moebius Syndrome, Temple Syndrome, and Mosaic Variegated Aneuploidy Syndrome.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Gillette Children's Specialty Healthcare

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Carla Grosmann is a Neurologist in Saint Paul, Minnesota. Dr. Grosmann is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Collagen VI-Related Myopathy, Horizontal Gaze Palsy with Progressive Scoliosis, Benign Autosomal Dominant Myopathy, and Duchenne Muscular Dystrophy.

    Experienced in Dysferlinopathy
    Pediatrics
    Experienced in Dysferlinopathy
    Pediatrics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Peter Ladner is a primary care provider, practicing in Pediatrics in Saint Paul, Minnesota. Dr. Ladner is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Down Syndrome, and Chromosome 11 Uniparental Disomy.

    Experienced in Dysferlinopathy
    Pediatric Neurology
    Experienced in Dysferlinopathy
    Pediatric Neurology

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Namita Garg is a Pediatric Neurologist in Saint Paul, Minnesota. Dr. Garg is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Generalized Tonic-Clonic Seizure, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Seizures, and GAPO Syndrome.

    Experienced in Dysferlinopathy
    Physiatry
    Experienced in Dysferlinopathy
    Physiatry

    Gillette Children's-Phalen Clinic

    435 Phalen Blvd, 
    Saint Paul, MN 
     (0.9 miles away)
    Languages Spoken:
    English

    John Fox is a Physiatrist in Saint Paul, Minnesota. Dr. Fox is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Rett Syndrome.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    HealthPartners Clinic St. Paul Como

    2500 Como Ave, 
    Saint Paul, MN 
     (5.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Katherine Munck is a primary care provider, practicing in Internal Medicine in Saint Paul, Minnesota. Dr. Munck is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Fetal Alcohol Syndrome (FAS), Pachydermoperiostosis, and Dysferlinopathy. Dr. Munck is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy

    U Of M Health Clinics And Surgery Center Inc.

    909 Fulton St SE, 
    Minneapolis, MN 
     (6.7 miles away)
    Languages Spoken:
    English

    Georgios Manousakis is a Neurologist in Minneapolis, Minnesota. Dr. Manousakis is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Paramyotonia Congenita, Myotonic Dystrophy, and Myotonic Dystrophy Type 2.

    Advanced in Dysferlinopathy
    Pediatric Neurology
    Advanced in Dysferlinopathy
    Pediatric Neurology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
     (7.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Peter Karachunski is a Pediatric Neurologist in Minneapolis, Minnesota. Dr. Karachunski is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Duchenne Muscular Dystrophy, Paramyotonia Congenita, Myotonic Dystrophy, and Myotonic Dystrophy Type 2.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine
    2635 University Ave W, Mail Stop 13901b Suite 160, 
    Saint Paul, MN 
     (5.7 miles away)
    Languages Spoken:
    English

    Sudha Chadalawada is a primary care provider, practicing in Family Medicine in Saint Paul, Minnesota. Dr. Chadalawada is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Chronic Cough, and Hypertension.

    Experienced in Dysferlinopathy
    Neuromusculoskeletal Medicine
    Experienced in Dysferlinopathy
    Neuromusculoskeletal Medicine

    Courage Kenny Rehabilitation Associates Minneapolis

    800 E 28th St Ste 1750, 
    Minneapolis, MN 
     (8.1 miles away)
    Languages Spoken:
    English

    Elizabeth Beck is a Neuromusculoskeletal Medicine provider in Minneapolis, Minnesota. Dr. Beck is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Spastic Paraplegia Type 2, Spastic Paraplegia Type 3A, Spastic Paraplegia Type 4, and L1 Syndrome.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Allina Health Heart Hospital Pharmacy

    920 E 28th St, 
    Minneapolis, MN 
     (8.4 miles away)
    Languages Spoken:
    English

    David Tetzlaff is a primary care provider, practicing in Internal Medicine in Minneapolis, Minnesota. Dr. Tetzlaff is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Lennox-Gastaut Syndrome (LGS), Endoscopy, and Pacemaker Implantation.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Abbott Northwestern Hospital

    800 E 28th St, 
    Minneapolis, MN 
     (8.4 miles away)
    Languages Spoken:
    English

    Christopher Bowron is a primary care provider, practicing in Internal Medicine in Minneapolis, Minnesota. Dr. Bowron is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Temple Syndrome, Endoscopy, and Ureteroscopy.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Abbott Northwestern Hospital

    800 E 28th St, 
    Minneapolis, MN 
     (8.4 miles away)
    Languages Spoken:
    English

    Peter Melchert is a primary care provider, practicing in Internal Medicine in Minneapolis, Minnesota. Dr. Melchert is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Moebius Syndrome, Cerebral Palsy, Rett Syndrome, and Weill-Marchesani Syndrome.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Abbott Northwestern Hospital

    800 E 28th St, 
    Minneapolis, MN 
     (8.4 miles away)
    Languages Spoken:
    English

    Angela Noble is a primary care provider, practicing in Internal Medicine in Minneapolis, Minnesota. Dr. Noble is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Moebius Syndrome, Cerebral Palsy, Lennox-Gastaut Syndrome (LGS), Baller-Gerold Syndrome, and Endoscopy.

    Showing 1-20 of 23

    Last Updated: 02/22/2026

    What is the definition of Dysferlinopathy?

    The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

    When should I see a Dysferlinopathy doctor near Saint Paul, MN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dysferlinopathy doctor near Saint Paul, MN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dysferlinopathy doctors near Saint Paul, MN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dysferlinopathy doctors near Saint Paul, MN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dysferlinopathy doctor near Saint Paul, MN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

    Why is it important to get a second opinion from a different Dysferlinopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dysferlinopathy doctor near Saint Paul, MN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dysferlinopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dysferlinopathy doctors near Saint Paul, MN?

    Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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